Tips and Resources Fact Sheets

Produced for the IDD Toolkit

Tips and Resources are offered on the science of specific disabilities, the effects disabilities might have on the individual and family, and treatment and service options. Produced by Vanderbilt Kennedy Communication and Dissemination services. See Accessed February 2024.

Informational Resources for primary care providers and their staff

(Link to State and Local Resources)

  • Tyler C, Baker S. Intellectual Disabilities at your Fingertips:  A Health Care Resource.  New Lenox, IL: High Tide Press; 2009.
  • McCreary BD and Jones J. Developmental Disabilities and Dual Diagnosis:  A Clinical Guide for Healthcare Professionals of All Disciplines. Montreal, Quebec/Kingston, Ontario, Canada: McGill-Queen’s University Press. 2013.
  • Lennox N, Boocock H, et al. Management Guidelines: Developmental Disability, Version 3. West Melbourne, Victoria, Australia: Therapeutic Guidelines. 2012.
  • Deb S, Kwok H, Bertelli M. International guide to prescribing psychotropic medication for the management of problem behaviours in adults with intellectual disabilities. World Psychiatry. 2009; 8: 181-186
  • Florida Center for Inclusive Communities, University of South Florida. Health care fact sheets and webinars. Available at Accessed February 2024.
  • Human Development Institute at University of Kentucky. Pre-service training for medical students. Available at Accessed February 2024.
  • American Academy of Developmental Medicine and Dentistry. Training webinars. Available at Accessed February 2024.
  • Westchester Institute for Human Development and the HealthMeet Project of the Arc. Case-based training modules; each case is revealed sequentially, with questions to follow. Available at Accessed February 2024.
  • Americans with Disabilities Act. Guidelines for physicians’ offices. Available at Accessed February 2024.
  • Bridges4Kids. Your next patient has autism. Available at   Accessed February 2024.
  • Frank Porter Graham Child Development Institute, University of North Carolina-Chapel Hill. A provider’s guide to care for women with physical disabilities and chronic health issues. Available at Accessed February 2024.
  • Moran J, Rafii M, Keller S, Singh B, Janicki M. National Task Group guidelines for dementia in people with IDD. Mayo Clinic Proceedings. 2013; 88 (8) 831-840. Available at Accessed February 2024.
  • National Task Group on Intellectual Disabilities and Dementia Practices Screening Instruments. Available at Accessed February 2024.
  • American Congress of Obstetricians and Gynecologists. Six PowerPoint presentations on health care for women with disabilities. Accessed February 2024.
    Women with Disabilities
  • Villanova University College of Nursing. Training videos for nurse practitioners caring for individuals with IDD. Accessed February 2024.
    The Nurse Practitioner Tool Kit
  • The American Association on Intellectual and Developmental Disabilities. Webinars on behavioral health, diagnosis, and health care for adults with intellectual and developmental disabilities. Accessed February 2024.
    AAIDD Video Library

Resources for providers, patients and families:

Resources related to Mental and Behavioral Health

  • The Center for START Services, which focuses on the mental health aspects of intellectual and developmental disabilities, has issued “Integrated Mental Health Treatment Guidelines for Prescribers in Intellectual and Developmental Disabilities: Accessed in February 2024.

Resources related to specific conditions

Autism websites that may be helpful for families, individuals, and direct support staff

Down syndrome websites

Fragile X syndrome websites

Prader-Willi syndrome websites

Williams syndrome websites

22q11.2 Deletion syndrome websites

Other genetic or related conditions

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