Some people with intellectual or developmental disabilities (IDD) have communication difficulties. People with intellectual disabilities or those whose disabilities directly affect speech, hearing, or sight are more likely to have communication difficulties. Unless a communication barrier is obvious, it is best not to assume one exists unless the patient, a family member, or other caregiver tells you about the barrier. Even when a communication difficulty exists, the exact barrier and the best way to address it often varies.
When a person with a disability does have difficulty with communication, it may be helpful to keep the following in mind:
- Allow additional time to exchange information.
- An assessment of language skills helps to choose the level of language you use. Talking with someone with a mild communication difficulty is very different than talking with a person with a moderate or severe communication difficulty.
- Many people have stronger receptive (understanding) communication skills than expressive skills.
- Conversely, a person’s expressive speech may sometimes give an impression of better comprehension than is actually the case, so check the patient’s understanding.
- Some people may be delayed in responding to questions; so much so that answers may seem to “come out of nowhere.”
- Some people with severe disabilities may also have difficulty giving you an accurate picture of their feelings and symptoms because of limitations in interpreting internal cues (e.g., need to urinate, anxiety). Involving caregivers who know the patient well may help you to better understand his/her experiences. However, as much as possible, continue to focus your communication efforts on the patient.
- If you are in a busy area with many distractions, consider moving to a quieter location.
|GOAL||SUGGESTED COMMUNICATION TIPS|
|CHOOSING APPROPRIATE LANGUAGE
|COMMUNICATING WITHOUT WORDS
Legal Obligations to Patients with Disabilities
The Americans with Disabilities Act (ADA) and Section 504 of the Rehabilitation Act of 1973 (Section 504) require doctors and other health care providers to ensure effective communication with patients with disabilities. This obligation includes providing auxiliary aids and services to assist with communication.
These federal laws require health care providers to provide and pay for auxiliary aids/services necessary for effective communication. These laws prohibit health care providers from passing costs of auxiliary aids/services to their patients.
Whether a patient needs an auxiliary aid/service and, if so, what aid/service will vary from individual to individual. Examples of auxiliary aids/services include but are not limited to the following:
- Sign language interpreters
- Braille materials
- Simplified language documents
- Computer Assisted Real Time text (CART)
- Large print documents
Keep in mind that if a patient with a disability is accompanied by a companion who has a disability that affects communication, the ADA and Section 504 require medical providers to ensure effective communication with that companion, if he or she is an individual who is involved in the patient’s care.
Remember that these tips are general guidance and will need to be adapted depending on the abilities and needs of your individual patient. Your goal should be to treat people with disabilities just as you would other patients while respecting any disability-related needs those patients may have.
- Bradley E, Lofchy J. Learning disability in the accident and emergency department. Advances in Psychiatric Treatment 2005,11:45-57.
- Chew KL, Iacono T, Tracy J. Overcoming communication barriers – working with patients with intellectual disabilities. Aust Fam Physician 2009 Jan-Feb;38(1-2):10-14. www.racgp.org.au/afp/200901/200901chew.pdf. Accessed September 2019.
- Lennox N, Beange H, Davis R, Survasula L, Edwards N, Graves P et al. Developmental Disability Steering Group. Management guidelines: Developmental disability. Version 2. Victoria, Australia: Therapeutic Guidelines Limited, 2005.
- McCreary BD. Developmental disabilities and dual diagnosis: A guide for Canadian psychiatrists. Kingston, ON: Developmental Consulting Program, Queen’s University, 2005.
- McCreary BD, Jones, J. Developmental Disabilities and Dual Diagnosis: A Clinical Guide for Healthcare Professionals of All Disciplines. Montreal, QC: McGill-Queen’s University Press, 2013.
- Citation for ADA is 42 U.S.C. §§ 12101 et seq.
- Citation for Section 504 is 29 U.S.C. § 794
Original tool: ©2011 Surrey Place Centre.
Developed by Sullivan, W & Developmental Disabilities Primary Care Initiative Co-editors. Funded by the Ontario Ministry of Community and Social Services and Ontario Ministry of Health and Long-Term Care, Surrey Place Centre and the Surrey Place Centre Charitable Foundation.
Modified with permission of Surrey Place Centre. This tool was reviewed and adapted for U.S. use by physicians on the Toolkit’s Advisory Committee; for list, view here.
Additional reviewers were Lynne F. Harmon, MA, CCC-SLP, President/Co-Director, Parent-Child Services, Knoxville, TN, and Martha M. Lafferty, JD, Managing Attorney, Disability Law & Advocacy Center of Tennessee, Nashville, TN.